I’m just coming out of a major flare-up. It completely floored me, leaving me in bed and unable to function for 3 days. It felt like an elephant was sitting on my hips, a rat was gnawing it’s way out of my head, a hot spring was bubbling in my belly and someone was hitting the bottom of my feet with the back of a cricket bat. My temperature regulation was all to pot so I alternated between being very cold and shivery and overheating and pouring with sweat. No vomiting though! A major breakthrough (I say hopefully) and relief.
I haven’t had a flare since late October last year and had been feeling pretty pleased with myself! Ha – serves me right for being smug. I have been seeing a gastroenterologist recently in an attempt to get to the bottom of why I’ve been suffering from bouts of vomiting (and corresponding headaches) every three to four weeks. (So going almost 10 weeks without a flare has been a great relief!) I’ve lost almost 2 stone, which has been nice – but it has been an extreme way to do it. Long story short, after lots of investigations involving cameras, scans, needles and sample containers it was decided (by the gastroenterologist) that I was suffering from migraines and needed to take migraine and anti-sickness medication, and to see a dietician about going on an exclusion diet in order to find out what the triggers were.
My GP prescribed the medication but could not refer me to a dietician as our CCG doesn’t fund this type of referral. So, with some advice from my GP (“don’t exclude too much at once as it will make it difficult to stick to”) I tried my own version of an exclusion diet. The internet gave me some ideas about foods that might cause my migraines so I decided to exclude cheese, chocolate, alcohol, citrus fruits, eggs and mustard from my diet for three weeks before, slowly, introducing them back, one at a time. It didn’t take me long to feel better, and to be honest after about two weeks I forgot I wasn’t eating cheese and had some! I love cheese.
The bottom line is that mustard makes me feel very ill! One of the reasons I had suspected cheese might be a culprit was because after eating cheese scones (my go to treat for afternoon tea!) or meals with a cheesy sauce I would often be ill. Turns out it’s not the cheese but the mustard added to enhance the cheesy flavour.
Most people have been a tad incredulous when I’ve told them. “Do you eat a lot of mustard?” has been the common enquiry. Well, yes I do – did! I use it in my cooking as a flavour enhancing ingredient. And it is in a huge number of common groceries – mayonnaise, most salad dressings, coleslaw, lots of supermarket deli salads, frozen fish, curry powders and pastes, ham, tartare sauce; to name a few.
Mustard is one of the common allergens that have to be highlighted under the European food labelling directive so it’s relatively easy to spot in the list of ingredients on food packaging – it appears in bold type. And I’ve banished mustard powder from my larder.
So if I’ve cut mustard out of my diet what has caused this latest flare? Well it could be one or a combination of several things.
1. Overdoing things? It has been a very busy Christmas and New Year so I haven’t been pacing myself with my usual care. Also I have neglected my exercise routine – I’ve not been doing any strengthening/stretching exercise for several weeks and my daily walks have not been daily, and have been significantly shorter than normal.
2. A reaction to the massage and reflexology session I’d had the day before my flare-up began?
3. Dehydration? I didn’t drink very much water the day before. And I am always told to drink plenty after a massage.
4. Something I ate? We ate out the night before the flare started. I was assured by the restaurant that they didn’t use mustard in their cooking but was it a hidden ingredient in something else they use? I visited a friend just before Christmas who had made soup. She hadn’t used mustard, however she had use some tikka masala paste and when we checked the ingredients in the paste we found mustard. So no soup for me. (And it smelt delicious!) Or is this flare a reaction to another ingredient/spice?
5. Nothing? It was just time for a flare.
My post-flare plan of action? Go back to the drawing board! I need to pace myself, restart my exercise regime – gently and build back up to pre-Christmas levels – continue to monitor what I eat and how it makes me feel, and stay hydrated. Wish me luck.