Tag Archives: fatigue

Self Management, Hobby or Habit?


 

It was timely happenstance that this post, from Pete Moore of the Pain Toolkit, popped into my twitter feed a few weeks ago – Is pain self-management a habit or a hobby?

I had been struggling with my pain levels and fatigue over the past couple of months and was beginning to realise that I had been neglecting many of the self-care measures I know help keep many of my symptoms manageable.

My “problem”, I think, is that when I feel well and my energy levels are reasonably good I act as if I don’t have a chronic illness, as if I have been cured, and fail to follow my tried and tested programme of physiotherapy, pacing and prioritising.

I had felt well and my pain levels had been reasonably low during the final few months of last year, so it had been easy to succumb to the temptation of believing that I didn’t have to do my physio exercises every day, or take my (prescribed) supplements or think about pacing. 

 I started to have the occasional bad day after Christmas, which soon grew into a flare of pain and fatigue, and meant that, by February, I was struggling to function well. I had landed in the classic boom bust cycle.

I’ve been back to the drawing board and revisited The Pain Toolkit so that I can get myself back on track. 

My self-care routine cannot be a hobby, it needs to be a habit, like (to use Pete Moore’s analogy) cleaning my teeth. I clean my teeth twice a day, every day. Cleaning my teeth is not dependent on how well I feel, it is something that is part of my day, non-negotiable – a habit.

 

Learning to be vegan…

I am learning to be vegan…

Not content with learning to run I have also decided to change my diet. There are many reasons why people choose a vegan diet including ethical, environmental and health considerations. My health is the main driver for me trying a vegan diet, but the ethical and environmental concerns are also driving this change. I know that eating mustard makes me very ill, but there seems to be other things that I eat that upset my body – causing pain and fatigue. I have given up meat, chocolate and wheat at various times in the past, and felt better for it, but I have never stopped eating eggs and dairy before. I have been contemplating a vegan diet for a while but it took my husband to set us on the path to change! His interest means that we can become a vegan household and I’m not having to do it alone.

A friend had recommended Deliciously Ella – a blog and cookbook written by Ella Woodward– a few months ago. Ella has PoTS (postural orthostatic tachycardia syndrome) and has used food and diet to help her control her symptoms. It has been a great place to get inspiration, and recipes.

The meal I have found the most challenging to make vegan is breakfast. I was addicted to Greek yoghurt and homemade granola. Until a fortnight ago I’d eaten almost it every day for the past two years. I thought that porridge may be a good alternative but I don’t enjoy the texture, so I’ve been experimenting with making a yoghurt substitute and this morning’s breakfast worked quite well.

I soaked a third of a cup of porridge oats and 4 brazil nuts in water overnight. This morning I discarded the water, then whizzed the oats and nuts together in a blender along with a tablespoon of coconut cream and a couple of peaches to make a thick smoothie – the consistency of yoghurt. It wasn’t a great colour but with a portion of granola and a handful of blueberries on top it made a tasty breakfast.


I think that I will try a blend of oats, brazil nuts and coconut cream tomorrow, and put the fruit on top. It might look more appetising! I’ll let you know how I get on.